About Us
Why this project exists
Thousands of Canadians have sought Hyperbaric Oxygen Therapy for legitimate, documented medical conditions — only to be denied, ignored, or priced out. The Canadian HBOT Registry exists to give those experiences structure, visibility, and weight.
Our mission
HBOT has a substantial and growing body of clinical evidence supporting its use across neurological injury, long-haul COVID, chronic wounds, radiation damage, and more. Yet Canadian provincial health plans cover HBOT for only a narrow set of indications — and even those covered are inconsistently administered.
Patients who pursue HBOT privately face costs ranging from $150 to $300 per session for protocols requiring 40–80 sessions. The financial and systemic barriers are not accidental — they are the product of policy inertia and inadequate patient representation in health technology assessments.
The Canadian HBOT Registry collects, organizes, and amplifies the experiences of Canadians who have navigated these barriers, building the kind of documented record that health ministries and courts recognize as meaningful.
Evidence-Centred
We anchor every argument in peer-reviewed science and documented patient outcomes. Anecdote alone is not advocacy — but when systematically collected, individual accounts become meaningful data.
Privacy-First
Submissions are encrypted in transit and stored in a controlled database accessible only to project administrators. We will never sell, trade, or share personally identifiable information without explicit, written consent.
Non-Partisan
We make no political endorsements and accept no institutional funding that would compromise our independence. Our allegiance is to evidence and to the individuals who share their stories with us.
Canadian Focus
Provincial health plans vary widely. We specifically document experiences within Canada's healthcare landscape — where federal and provincial jurisdiction intersect in ways that often disadvantage patients seeking HBOT.
How your submission is used
From intake to impact — your experience moves through a careful, privacy-preserving process.
- 01
You submit your experience
Using our confidential intake form, you describe the circumstances of your HBOT denial or barrier. We ask about your condition, how you sought treatment, what response you received, and whether you have documentation.
- 02
We review and code submissions
Each submission is reviewed and coded by our research team. We identify patterns — recurring denial language, specific insurer or provincial policy barriers, conditions most often denied — to build a structured dataset.
- 03
Anonymized reports go to decision-makers
We prepare anonymized aggregate reports and share them with provincial health ministers, patient advocacy organizations, healthcare lawyers, and academic researchers studying access-to-care inequities.
- 04
Stories inform public advocacy
With your explicit consent, de-identified accounts may appear in public-facing materials — submissions to parliamentary committees, open letters, or media briefings — always with privacy fully protected.
Ready to contribute?
Sharing your experience takes less than 10 minutes and makes a genuine difference.